The Pioneer Pelvic Pain Clinic | Albany

Pioneer Pelvic Pain Clinic | Resources

The resources listed herein are provided solely for general informational purposes and should not be construed as medical advice or an endorsement of their suitability or reliability by any entity or individual. No liability is assumed for any consequences that may arise from the use of these resources. Users are strongly encouraged to exercise their own judgment, verify information, and seek professional advice as needed when utilising the listed resources.

Pelvic Pain Clinic Patient Resources

The resources listed herein are provided solely for general informational purposes and should not be construed as medical advice or an endorsement of their suitability or reliability by any entity or individual.

Apps

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Youth

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Booklet

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Products

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Videos

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Podcasts

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Websites

Endometriosis Australia

Endometriosis Australia aims to raise awareness across various communities (medical, business and the general public) as well as provide educational programs and raise funds. Visit their website for info on:

Endometriosis WA (EndoWA)

Coordinates and delivers programs, events and activities to provide quality services and support to people managing endometriosis and their families and carers. Endo WA provides accurate and up to date information on endometriosis in accessible and understandable formats.

Endozone

An evidence based website co-created with people affected by endo. Funded by the Australian Government and Jean Hailes for Women’s Health, EndoZone has been developed by researchers, health experts, Australia’s endometriosis(endo) associations, and most importantly of all, you. EndoZone learns what users want and responds to what they need.

Pelvic Pain Foundation Australia

A not-for-profit organisation formed to build a healthier and more productive community by improving the quality of life of people with pelvic pain. Website includes a number of resources including information about the PPEP Talk program (Periods, Pain, Endometriosis Program) which delivers fun, medically accurate and age appropriate information sessions to schools and other groups.

Jean Hailes for Women’s Health

Jean Hailes for Women’s Health is a national not for profit organisation dedicated to improving women’s health across Australia through every life stage. The website includes evidence based, easily accessible information as well as helpful external resources, many of which are available in different languages.

Exercise

Exercising with Endometriosis

Exercise can reduce pain sensitisation, improve mental health and relax tight muscles.
This page explains how exercise can help with pain associated with endometriosis and includes information on the type of exercises that may help.
 

Online Exercise Classes

The following are online exercise programs which you can subscribe to if you choose.

An Endometriosis-Friendly Workout

While it might not sound like endometriosis pain and working out would go together, studies actually support the idea that movement can help alleviate some of the pain and symptoms. This 20-minute workout is focused on your posterior chain – that’s all the muscle groups down the back of your body.

Relaxation

Relaxation Methods / Sleeping

Understanding the link between endometriosis and sleep quality is important because sleepiness and fatigue can result in difficulty managing your daytime activities.

This page has a step-by-step guide to relaxation, including a voice track to listen to.

Sleep Hygiene: Fad or fiction?

A Jean Hailes podcast by Denise Scott asking about Sleep Hygiene – what does it actually mean?

Mental Health Support

Head to Health

Head to Health aims to help all Australians access the mental health and wellbeing services that are right for them. Choose the most suitable care options, whether that’s face-to-face, via phone, or online.

Whether you are trying to improve your own sense of wellbeing, looking for help with something that is bothering you, or helping someone you care about, Head to Health is a good place to start.

This Way Up

Practical strategies for managing chronic pain, and associated low mood and anxiety. An 8-lesson program based on Cognitive Behavioural Therapy (or CBT), which is designed to help you lessen the impact of pain on your wellbeing and quality of life.

Apps

Curable

Curable is an app which provides education to users on the neuroscience of pain and the factors leading to the development of chronic pain. The co-founders developed a program using pain psychology strategies and made it accessible through this app (subscription required). Curable describes itself as a “different approach to your pain”.

Qendo

An free app for endometriosis, adenomyosis, PCOS, pelvic pain and infertility, developed by the community for the community and is available for download in Australia and New Zealand. The Qendo app includes a symptom tracker, allows users to develop a “pain plan” and facilitates access to education and connection within the community.

Frendo

Frendo has a real-time screening tool, to assist with your first step towards diagnosis and health tracker functions to help you notice patterns in symptoms and create a healthy routine. The frendo social media community is a place to find others who know what it’s like to live with endo.

Matilda

For access to expert holistic care from the comfort of your own home. Connect with other endo warriors in the Tilly Tribe community, sharing challenges and triumphs to keep you motivated and on track to success.

Youth

Headspace

An organisation who support young people with mental health, physical health (including sexual health), alcohol and other drug services, as well as work and study support. With a focus on early intervention, they work with young people to provide support at a crucial time in their lives – to help get them back on track and strengthen their ability to manage their mental health in the future.

Youth Support

PPEP Talk program (Periods, Pain, Endometriosis Program) delivers fun, medically accurate and age appropriate information sessions to schools and other groups.

Trans and Gender Diverse Teens

A FREE online Periods, Pain and Endometriosis (PPEP Talk) session focussing on Trans and Gender Diverse (TGD) teens and their families.

Booklet

Pelvic Pain Education Booklet

This is an excellent booklet written by Gynaecologist Susan Evans. It includes an introduction to a wide range of pelvic pains.

Products

TENS Machine

A form of pain relief that delivers a small electrical current to the body through electrodes attached to the skin.

Squatty Potty

A stool to promote correct posture on the toilet.

Wili Heat Bag - Pelvic and Back Wrap

Help with cramps, muscle pains and aches. 100% Cotton and hand made in South Australia by an Adelaide-based family run business.

Spoonie Wrap Around Heat Pack

Spoonie wrap around heat pack - small and large. Made in Melbourne, Australia.

Videos

EndoActive

Endometriosis: Shared Perspectives. This free series videos feature experienced specialists and a wide range of patient interviews.

Topics include:
• Endometriosis and pelvic pain
• Physiotherapy and pelvic pain
• Early diagnosis of menstrual disturbance
• Endometriosis and the bowel
• The immune system, inflammation and endometriosis
• Ultrasound and MRI for endometriosis

Endometriosis Australia Symposium

The Endometriosis Australia Symposium 2023 as part of Endo March is an educational symposium, designed for the public and health practitioners to better understand the debilitating disease that affects 1 in 9 women, girls, and those assigned females at birth.

Theme: The importance of research

Podcasts

The Jean Hailes Podcast

Jean Hailes for Women’s Health is a national not-for-profit organisation dedicated to improving women’s health across Australia through every life stage.

This Medical Life

Pelvic Pain And Endometriosis | More Than The Black Spots. Although intended as a resource for medical practitioners, some patients will also appreciate this podcast as it presents a lot of information in a really helpful way.

Questions?

Please contact us with any queries via email or by calling 9842 2822.
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